Claremore Daily Progress

Top Stories

October 31, 2013

Kylie's Heart: Claremore toddler faces health struggle

CLAREMORE —

By all outward appearances, Kylie Casey is a healthy, normal, little girl.
Born in July, Kylie is the daughter of Claremore couple, Bryan and Tracey Casey, and the baby sister of Garrett.
Her color is good. She coos and laughs. She interacts with the other children her age at daycare. And,  she’s as wide-eyed and curious as any other baby her age.
But, appearances can be deceiving.
Although young, Kylie’s short life has been fraught with multiple health challenges, foremost of which is her eventual need of heart surgery.
Kylie’s mother Tracy said “Kylie was diagnosed in July with Heterotaxy Syndrome, which is a rare birth defect which involves the heart and other organs,” Casey said. “We’d taken (Kylie) in for a routine echocardiogram for a heart murmur that her pediatrician had heard at her one month check up. Within the first few minutes, I could tell something wasn’t right — just watching the lab technician’s face and reactions to what she was seeing, I knew something was seriously wrong.
“She immediately paged the cardiologist on call and then took us to ‘the room’ to explain everything that they saw,” she continued. “After additional tests, Kylie was diagnosed with Heterotaxy, which is so rare, it’s only found in one in four million births.”
As each case of Heterotaxy differs from another, the specifics in Kylie’s case weren’t encouraging.
“We were told that Kylie’s type (of Heterotaxy) included Levocardia, which meant that her heart was in the correct place, but her (abdominal) organs weren’t,” Tracy continued. “She was also found to have multiple birth defects, among them, congenital corrected transposition of the great arteries (CCTGA), Ebstein’s syndrome and anomalous pulmonary venous return — each of which would be hard enough to cope with and treat on their own, but to hear our baby had all of these conditions ...we were shocked ...heartbroken.”

Text Only
Top Stories
  • Obama wants limits on US company mergers abroad

    Staking out a populist stand ahead of the midterm elections, President Barack Obama on Thursday demanded “economic patriotism” from U.S. corporations that use legal means to avoid U.S. taxes through overseas mergers.

    July 25, 2014

  • Local churches impact poverty

    Claremore First Christian Church, First United Methodist and the Pastoral Alliance are combining efforts to host a 16-week program, “Getting Ahead in a Just Getting by World,” based off of the national program — “bridges out of poverty.”

    July 25, 2014

  • Grand Jury recesses until August

    The multicounty grand jury charged with investigating accusations of misconduct by Rogers County officials recessed Thursday until August 19-21, saying it needed to hear from more witnesses before returning a finding in the matter.

    July 25, 2014

  • Former Sheriff’s deputy arrested

    The Rogers County Sheriff’s Office arrested ex-deputy Brian Kindle Wednesday after receiving multiple reports concerning his safety.

    July 25, 2014

  • Chelsea man receives 54-year sentence for child abuse

    A Chelsea man was sentenced to 54 years in prison Wednesday after he pleaded guilty to the charges of child abuse by injury and child sexual abuse.

    July 25, 2014

  • Rogers County Clerk sues The Daily Progress

    Rogers County Clerk Robin Anderson has filed a lawsuit against The Daily Progress and the newspaper’s government reporter Salesha Wilken.

    July 24, 2014

  • Band.jpg Local band loses everything on tour

    A Claremore band, The Last Slice, had $30,000 worth of equipment, instruments, merchandise and clothes stolen while on the East Coast Ska Revival tour in Miami, Fla.

    July 24, 2014 1 Photo

  • RSU among Top 15 Southwest schools for game development

    Animation Career Review ranked Rogers State University as the 12th best school in the Southwest for Game Design and Development. 

    July 24, 2014

  • SEARCH DAY 3

    A search connected to a Rogers County cold case continued Wednesday at a Tiawah Hills property. Law enforcement agencies worked through the heat and elements in an attempt to locate associated evidence that could be used to explain the disappearance of a local woman 18 years ago.

    July 24, 2014

  • 34 OSBI agents graduate from investigative academy

    OSBI has graduated its 14th advanced investigative academy.

    July 23, 2014