Claremore Daily Progress

Top Stories

October 31, 2013

Kylie's Heart: Claremore toddler faces health struggle



But Tracy quickly turned her shock into action, “obsessively” researching her daughter’s conditions online and reaching out to support groups and specialists for advice and help.
“Kylie does have one normal sized transverse spleen and most patients with Heterotaxy have either no spleen or polysplenia, so that’s something,” she said, “but I was spending so much time online researching (Kylie’s) conditions, Bryan threatened to turn off the Internet — I was obsessed with finding out as much as I could — with seeing what we could do to help my baby.”
Through Tracy’s research, she was able to find a pediatric doctor at Texas Children’s Hospital in Houston who specialized in Heterotaxy, as well as one of the country’s foremost pediatric cardiological surgeons, Dr. Heather Dickerson, M.D. and Dr. Charles Fraser, M.D., respectively.
“All my hours in front of the computer paid off —I learned of two amazing specialists in Texas, with whom we’ve since had several consultations,” Tracy said. “We also had Kylie undergo more testing — EKG’s, MRI’s, ultrasounds of her intestines as we’d been told some of her organs were transversed (reversed).”
The additional testing eventually did yield some good news, Tracey said, as they were found that Kylie’s heart defects were less severe than initially thought.
“Just in the past few weeks, we’ve learned that, while Kylie does have Heterotaxy and she will eventually need heart surgery — it’s very serious, but not as immediately dire as we were first led to believe,” she said. 
According to Dr. Dickerson’s diagnosis, Kylie has Heterotaxy, with polysplenia and her heart is essentially “inverted” — not transversed completely but “like a 180” of what a normal heart should be.
“Dr. Dickerson told us that Kylie’s heart’s collecting chambers connect to the right pumping chambers, which connect to right outflow tracts and carries blood to her body and lungs,” she said. “Kylie’s heart has an artrial septal deviation — the wall between the blood collecting chambers — which causes her pulmonary veins to drain to the wrong (collecting) chambers. Her heart is able to collect and pump blood to her body, but it does have a tiny hole and she’s going to need surgery fairly soon to patch the hole and move her septum —probably before she’s one year old.”

Text Only
Top Stories
  • Former Sheriff’s deputy arrested

    The Rogers County Sheriff’s Office arrested ex-deputy Brian Kindle Wednesday after receiving multiple reports concerning his safety.

    July 25, 2014

  • Chelsea man receives 54-year sentence for child abuse

    A Chelsea man was sentenced to 54 years in prison Wednesday after he pleaded guilty to the charges of child abuse by injury and child sexual abuse.

    July 25, 2014

  • Rogers County Clerk sues The Daily Progress

    Rogers County Clerk Robin Anderson has filed a lawsuit against The Daily Progress and the newspaper’s government reporter Salesha Wilken.

    July 24, 2014

  • Band.jpg Local band loses everything on tour

    A Claremore band, The Last Slice, had $30,000 worth of equipment, instruments, merchandise and clothes stolen while on the East Coast Ska Revival tour in Miami, Fla.

    July 24, 2014 1 Photo

  • RSU among Top 15 Southwest schools for game development

    Animation Career Review ranked Rogers State University as the 12th best school in the Southwest for Game Design and Development. 

    July 24, 2014


    A search connected to a Rogers County cold case continued Wednesday at a Tiawah Hills property. Law enforcement agencies worked through the heat and elements in an attempt to locate associated evidence that could be used to explain the disappearance of a local woman 18 years ago.

    July 24, 2014

  • 34 OSBI agents graduate from investigative academy

    OSBI has graduated its 14th advanced investigative academy.

    July 23, 2014

  • Study: 1 in 4 Oklahoma kids live in poverty

     Nearly 1 in 4 Oklahoma children live in poverty and the number of children living in high-poverty areas has more than doubled since 2000, according to a national study released Tuesday.

    July 23, 2014

  • GRDA Newkirk storm assistance.jpg Power for Progress…

    When high winds rolled across Kay County on July 14, they had little mercy on the power lines in the area.

    July 23, 2014 1 Photo

  • Okla. AG says health care ruling bolsters case

    Oklahoma’s attorney general says a decision by a federal appeals court in Washington, D.C., against a provision of the federal health care law bolsters the state’s lawsuit that challenges a similar provision of the Affordable Care Act.

    July 23, 2014


Do you prefer the warm summer weather of 2013 or the mild rainy weather we are currently experiencing?

Hot/Dry Summer
Mild/Wet Summer
I prefer any season but Summer.
I don't have an opinion.
     View Results
Featured Ads
AP Video
Power to Be Restored After Wash. Wildfire Crashed Air Algerie Plane Found in Mali Israel Mulls Ceasefire Amid Gaza Offensive In Case of Fire, Oxygen Masks for Pets Mobile App Gives Tour of Battle of Atlanta Sites Anti-violence Advocate Killed, but Not Silenced. Dempsey: Putin May Light Fire and Lose Control Arizona Prison Chief: Execution Wasn't Botched Calif. Police Investigate Peacock Shooting Death Raw: Protesters, Soldiers Clash in West Bank Police: Doctor Who Shot Gunman 'Saved Lives' 'Modern Family' Star on Gay Athletes Coming Out MN Twins Debut Beer Vending Machine DA: Pa. Doctor Fired Back at Hospital Gunman Raw: Iowa Police Dash Cam Shows Wild Chase